I finished some really indepth sensory testing and handed it in to Damien's SLP to give it to the OT for me. They asked me to comment underneath on each section. If you've taken these tests before for any kind of developmental problem you remember how they say "always, most of the time, sometimes, never. Well some of the questions didn't seem right in line with sensory issues but I guess I didn't think about it and commented as much as possible. I commented on the questions about his social skills and how he won't share at school, how he falls apart at any changes in routine, his fascination with the computer, hotwheels and Thomas. He can name all the Transfomers, all Thomas characters, etc. How he seems pretty knowledgeable on school work, etc.
Again people online say I need to research Aspergers. I looked up the symptoms and My God that has to be it. I have a feeling that this OT might say that this is his problem. If this is it, it would answer so much. His old teacher already said she was sure he had PDD's but I'm not sure if this is much different. How long can a parent be drug around before getting any answers? He's almost 5!!! I WANT FUCKING ANSWERS!!!! I'm so damn tired of it!! I just want answers!!!!
Why does he jump off the couch and bed repeatedly?
Why won't he attempt to share or play side by side with anyone?
Why does he hurt Damien and act like it's no big deal?
Why does he zone out when he's on the computer?
Why does he talk to himself about Hotwheels when we aren't even in the same room?
Why if anything changes here or at home he falls apart crying?
Why can't we do anything or go anywhere without something being too loud or too bright.
Why can't he understand no??? Why does he do things again after we say no?
Why does he repeat everything so much? He drives me nuts! I know his birthday is coming!!!
Why does my son puke at the smell of baby poop or certain textures in his mouth?
Why can't he wear all his clothes?
Why is he so fascinated with Blue chairs, the D Dinosaur spot on the circle rug, the blue cups.
When will I feel like I can take him to a friend's birthday party?
Why does my family treat him like he's a plague? My family has Alex over but never Dominic.
Why do people always say "he's just a boy!" Why don't they see what we see?
What is going to happen to him once he's in school?
Is he going to succeed?
Why does his school have teachers who are unaware or to help with special needs?????
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2 comments:
(((()))) I can only imagine how daunting that is for you to take all this on. People do not always see what we as parents see, or they want to make you feel better by saying, he's a boy. I am going through some rough spots with my only boy, and people keep saying that to me too, but my gut is telling me otherwise.
Hi Sabrina. You don't know me, but I found you through Jess's blog. I have a child who is 4 and has ADHD and we aren't sure yet, but think he has some form of SID. He was tested at three in preschool for behavior and social problems and his scores came back as having a PDD. We took him to a mental health specialist and they said it was just ADHD(I am not totally convinced it is just ADHD), but just like you, we struggle daily with him and his behaviors. It is so frustrating and so hard to deal with.
I guess I commented because I know what you are going through. It is very scary and so hard for people on the outside to understand the special needs these kids have and what it takes to parent them. I guess I just wanted to let you know you aren't alone, there are more of us out there and I would love to speak to you more about this if you feel you would like to share with another parent dealing with similar issues. I am new to this and recently started a blog of my own. I haven't really talked much about my son and his issues, as so many people are so judgmental out there, I am afraid to say to much. I admire you for putting it out there for other people to see. We need to be advocates for our kids and get them the help they need. I agree with so much of what you have said. If you ever want to talk feel free to email me at sanson1999@yahoo.com, I would love to chat with you.
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