Monday, September 22, 2008
Signs so far:
I hope this continues and I can learn more with him. This has been awesome. Much better than the charades we usually have to play to figure out what his needs are.
Friday, September 12, 2008
Thursday, September 04, 2008
School has been in session for about 3 weeks now. Dominic has came home upset nearly daily about 2 of those weeks. (sigh) Come to find out there are 2..count them....1....2....Dominic's in his class this year. The teacher informed me before school started that she was going to have to come up with some way to call the boys' name. Well her answer was to call Dominic "D." Yes just the letter D and he's not taking it well at all. He comes home very upset with tears welling up in his eyes (he is super sensitive) screaming or pounding on the table, "I'm not 'D' I'm Dominic!!!!" He talks about the other Dominick in an evil tone clearly despising there is another kid with this name in school. I'm afraid he may just take action and try ridding class of the other Dominick.
I wrote his teacher a note trying to explain he does not adapt well with change which is part of his IEP situation since he's been diagnosised with SID. I asked for her very nicely if she could please try to find another way to call Dominic rather than "D" because it's too much of a change for him and he's really not liking it. She wrote back she noticed that he was pretty upset with it and that she would try to figure something else out. I think the worst part is that the kids in his class have started doing it except for 2 that were in his class last year and he's probably screaming "my name's Dominic, not D!!!!" It's all very upsetting to him.
Hopefully she figures something out because it's little things like this that can really screw up the year. We've had several instances of just the slightest change that will throw him off such as having to move from a blue chair to a red or not sitting on the Dinosaur in circle time anymore. These little things can ruin him for weeks if it's not solved quickly. He's got a Para sitting with him and hopefully she can help him by calling him Dominic since she's dealing only with him (part of his IEP for the ADHD and SID)
Friday, August 15, 2008
On the 18th he will be starting school leaving here at 7:30 and coming home at noon M-F. I am so hoping with this intense school routine and therapy we will have more words soon. We had a teacher meet and greet this week and come to find out there is some boy who is deaf in class so they will do a LOT of signing. I've worked with him on some signs but hopefully he will learn more and understand that we know what he means with these gestures. Gestures right now is a sound or a charade to let us know what he needs or wants.
Tuesday, July 29, 2008
Thursday, July 03, 2008
Here's a list of his words now. He turns 3 in just a few days!
bubble, blue, cheese, mamma, dadda, mom, uh-oh, uh-uh, yes, dis, boo, moo, yay, yeah, please, and peek-a-boo(pee-bo!)
Tuesday, June 03, 2008
I still am interested in getting him in the hospital program just because it's also 1 on 1 and extensive therapy. The problem is towing all the kids around twice a week, keeping them busy for 45 minutes, etc. I think I'll get burnt out. I think I'm already burnt out as it is but I know eventually he will talk, whether with words, sign language, gestures. I can get some gestures out of him (finger on mouth making mmm.. sound for more) but most of the time he will bring whatever he wants or needs to me to figure out what he's wanting. For example if he wants a drink he'll bring me a cup.
Here's a video from the other day of him telling me exactly how he feels about giving up his bed to Mia so the new baby can sleep in the crib. He thinks Mia should stay in the crib. This is the gesture speech I am also talking about. He does say yes, no, mamma, lots of tongue thrust and spitting. Usually active speech where he is excited or mad there is lots of spitting and tongue thrust.
Wednesday, May 14, 2008
Thursday, April 24, 2008
Now I would worry too much but I always catch him obsessively doing things. I catch him all the time biting his toenails off and well the other day he had bit one down to where it had began to bleed because it was so short. Anyways- hopefully he'll stop and I won't have to take him in to the Dr with weird bite marks on himself and then have to explain it all to his Ped at his Kinder shot appt in 2 weeks.
Thursday, April 17, 2008
Tuesday, April 15, 2008
So sadly he'll miss out on seeing his future classmates and the classroom visit they are doing but good thing is he already goes to the school for preschool, we know his teacher and I can get him in for alittle tour of the classroom later.
Monday, April 14, 2008
Sunday, April 13, 2008
We've told him if he continues to do so well, we will go to Target (his favorite store) and he can find a new bionicle. He's excited so every morning he wakes, checks himself and screams, "mommy! I didn't pee the bed!!! I get Bionicle now??"
Friday, April 11, 2008
Dave and I were there along with the following staff.
- Mr. George Principal of Elementary school
- Mrs. K- Dominic's current teacher
- Kris- Dom's EI Special Ed teacher who comes to work with him
- Lena- School Psychologist for Elementary school
- Susie- EI Speech Pathologist
- Barb- the Elementary Special Ed Teacher
- Mrs. B- Dominic's assigned Kindergarten Teacher
- Susan- Elementary Speech Pathologist
- (missing) Robbie- Occupational Therapist
As far as academic achievement and performance, they found that he is still cognitively delayed and will need some help to keep up with his peers. On Communication he is at a 55 mth level (he's 63 months old) for expressive language. He is at 50 mth level for Receptive. So basically he communicates awesome now but when you ask him to do something he doesn't quite understand. He made some improvements on completing tasks but still not up to par. Because of this he has a hard time following directions and answering questions in a classroom.
Socially he has improved quite a bit but is still delayed. He needs to learn to share, follow rules, play with peers. They described him quite abit as a loner which makes me sad. Here is what exactly is wrote on his IEP from the teacher's standpoint.
Dominic s active in the classroom often touching other students, getting in their space, or moving around in his set. His attention to task varies. Sometimes he is very engaged in the activity while other times he is completely turned around looking away from the source of instruction. he has difficulty understanding personal boundaries as well as classroom expectations At times it appears as though he acts on impulse without realizing he is breaking a class rule, such as when he takes objects out of the center areas around the classroom. It doesn't appear as though he is doing this deliberately to be defiant but rather he is playing and just wrapped up in what he is doing. There are tims when he is defiant and resists adult instruction especially when it is a table time activity that is little interest to him.
When he was 4, his EI teacher had me have him tested for ADHD which he scored borderline ADHD/more oppositional. I don't believe she ever put it in his folder though. It seemed to me they were trying not to just slap the title on him so I went ahead and told them that we expected this as he had been tested for ADHD and did score that he did indeed have ADHD but we chose not to medicate.
The Sensory Processing testing we did a few months back did identify him as a SID child/student (THANK THE LORD!! ANSWERS! OMG!) Just hearing that finally made me just about start crying right there at the table as they read it. I had my head looking down just shaking my head in agreement. Based on classroom observation by EI, testing his Teacher and I both took they will be giving him OT to work with this and fine motor skills since he still can't hold a pencil right.
So here's his accommodations this year
- classroom visual schedule
- seating close to teacher
- removing extra materials from work area
- clear explanation of behavior explained in a way he can understand
- prepare for changes n chdule but maintain consistet schedule as much as possible
- allow additional time for responding to tasks
- demonstrate activities or directions that need to be completed
- frequent prompting and redirection
- small group instruction as much as possible
- frequent repetition of new concepts
- use of visual cues and hands on learning
- teacher will use behavioral charts for rewarding
- Special ed teacher will check in twice a month for updates
On District and State Assessment testing he will be given additional time, a small group environment, demonstration o directions, and use of visual cues as allowed.
We made a Behavior Intervention Plan with strategies, consequences, and crisis management (lets hope that never is needed!) Dominic has always had a very hard time controlling anger. At Early Intervention, he hit, kicked, screamed, slapped teachers and bus drivers. They would have to restrain him, rock him, put him in a quiet place to settle down. Now he hasn't been hitting much but he won't move to where he needs to go, runs away, screams, cries, etc.
So anyways that is a summary of the meeting. In all it was a hour and a half long! We had a book of papers to take home and go through. It went very well though, I'm pleased, alittle worried about no summer services but we'll try homeschooling as much as possible this summer to see if we can keep him on task and caught up.
Thursday, April 10, 2008
Thursday, April 03, 2008
So here's the deal. First, the Stupid moronic women running the program know nothing about special needs. I should have found out more before deciding to pull him out of Early Intervention. If he gags, throws up, it's stomach flu and they send him home. He has Sensory Intergration Disorder so certain foods, smells, etc will send his senses into overdrive. So we started having phone calls at lunch saying he would gag looking at the food or when he tried eating it. I told them about this at the beginning of the year he had this and he might do these things. Well they started asking me to pick him up a few times because they didn't want to take a chance he might puke on the bus BUT they also said he would have to stay home the next day. Most days he never touched his food and would just look around the lunch room which was one of the reasons they had also called. Finally I said, look. I'll pack lunches for him, things I know he can eat, he likes and won't get sick on. For about a month we've been fine. Till yesterday.
I get a note saying this
my nutrition coordinator at Head Start, ------, asked me to request a doctors note from you about bringing his own lunch. She said due to the lunch program that head start uses, they will require a note of explanation. If you have any questions about this you can call.......
I pack him healthy lunches, not crap. Believe me since I used to do daycare i should know what's healthy!! Should I just let him starve to death? Sit at school at eat nothing and ride the bus home for a hour? This is another stupid hoop they want me to jump through and I'm freakin tired of it. So this time my dh is calling the nutrition coordinator. Early Intervention has also said because of the SID incidents in the past to call them if we needed help with anything so I may be calling them today to about this.
I will never put my kids in some stupid state funded program again. If you have a child on an IEP and they offer a spot in Head Start, DON'T DO IT!!! They call me all the time about this and that. They need proof of this, they need to talk to me about that or I'm breaking some stupid rule. I told Early Intervention I made a huge mistake trying to put him at the school he'll be in Kindergarten at next year and Damien will be there at the EI center ALL of his preschool years because I am not dealing with this again.
Worst part is now I have this IEP meeting with the principal, Headstart teachers, EI special ed teacher, and the Kinder teachers trying to figure out who's class he gets next year. I am already stressed out completely about it and having the Headstart teachers in there I may just explode and say GET OUT because I don't want to deal with them anymore. I just want May to come and to deal with the school district from then on out NOT Headstart.
Oh and before I noticed this note, I packed Dom a PBJ, Strawberries, Apple Juice, Gogurt. I was NOT going to take that away from him so I sent it. He saw me pack it. If they don't allow him to eat it I will be PEEVED!! He will not eat Chicken Noodles over mashed potatoes.
Wednesday, April 02, 2008
My cousin Jordan is severely autistic. Ever since having my own set of problems with Dominic my aunt has always been there if I had any questions, especially when finding out some of the "traits" he has had. Dominic however is nothing like Jordan.
Jordan is 17 now. My Aunt's son but my Grandmother's baby. She puts on his socks and shoes, fixes his hair, she takes him to the park to play. He gets excited being with kids, flapping his arms and hopping in place. When he was a baby he seemed pretty normal except for a rather large head which runs in the family. However by the time he was 1 ish, it was apparent there were other things going on. He would space out, not talk or notice you were there. As he grew older, his behavior, ticks, flapping, etc were so extremely hard on them both that it was enough that my Aunt and Uncle decided that Jordan would be an only child because he would require so much work. He was enrolled in Early Intervention by the time he was 2 and started meds by the time he was 4. When my uncle would come to family events with my aunt and Jordan the visit would always be short. I felt terrible for my uncle, you could tell he was always embarrassed by his behavior where ever they were to go. I remember when my uncle moved to a new home about 6 yrs ago, it just so happened the boy next door was special needs as well and he and Jordan hit it off becoming great friends the first day they moved in! We were all thrilled watching them. That was Jordan's first "real" friend.
Monday, March 31, 2008
Thursday, March 27, 2008
Wednesday, March 26, 2008
Dominic is doing so well right now. He is definitely ready for Kindergarten except for his social interacting. He has completed his IEP Goals and we will be having his IEP meeting soon deciding whether a Para is necessary or not. I think as long as he has a good teacher, then they will be able to work with his quirks. I am fairly confident of that. I still have no idea how he ranked on his SID testing. I know when they ranked him on his social last year, not much had changed.
It's great to see one boy of mine finally moving up and out (hopefully) of developmental delays. Now we just need to get Damien fixed up. We know that his tongue sits forward which is why he spits and has so much tongue thrust. Lately he's been biting his tongue quite a bit on accident when he's running around. So those are my updates.
Tuesday, February 19, 2008
She said behaviorally they have good weeks and bad weeks with Dominic. They'll have several good weeks and then be stuck in a bad one which is how it is here at home. She started telling me of a few situations which I will tell EI about because I know she hasn't. She mentioned how if he's zoned out of what they are doing or when frustrated he will sit with his head on his knees and rock back and forth which she "knew" was an Autistic trait but she didn't see him as Autistic. People she has NO CLUE about Disabilities. I think that's what frustrating me the most with the school is the lack of knowledge. After that remark I told her that at Early Intervention I was told when he was 3, he resembles a child with PDD's of Autism. I explained to her how it was a branch (so to speak) of Autism but a child appears more "normal" if you want to call it that. We talked about the SID testing that she had filled out and how she thought some of the questions really pertained to him. I told her I had been researching SID for awhile so I was confident that was what was going on too but I had no idea that Aspergers or PDD's (highly functioning Autism) children usually had SID.
She said that when he is upset he will still run off and hide or sit in a corner. At the beginning of the year he would only sit on the dinosaur at circle time but now he is willing to let other kids sit there. If upset, sometimes he will roll all around the room instead of walking. He will have a bad day when she is gone so they have to be careful on those days. If she tells him their schedule has changed, he will blow up at her for example no show and tell. He talks about hotwheels all day at school but does his work. He is still not able to hold a pencil right but hopefully the OT coming from EI will be able to work with him on that.
Overall it went well. I think she knows that he's got some problems that we need to get solved with him before Kindergarten. I am so scared for next year. I know we'll be having most likely some sort of transition conference to discuss Kindergarten with the principal and 3 teachers. I want someone next year who can tolerate his behavior yet help him when his Para isn't around. I want him to succeed instead of being labeled a bad kid and failing because some stupid teacher can't help figure him out.
Sunday, February 17, 2008
Saturday I put a shirt on Dominic. "ITCHY!!! It's ITCHY! I don't want to wear this!" I had to walk off. This is draining us. I put a cotton long sleeve T on him and he was fine for about a hour. Then we started tearing at his back again saying it hurt. I told him to have Daddy change it but Dominic needed to find a shirt he could wear the rest of the day. It worked I guess because we didn't have to switch again.
Dominic has been an emotional mess again. He's cried alot today about Damien bugging him playing with his toys or bugging him while playing the Xbox. He cries so much over stupid things. I just don't even know how to handle it anymore. What a fun weekend this was! lol
Friday, February 15, 2008
Thursday, February 14, 2008
We come home and he's fine all day. Stomach flu for any of us is only a 24 hour thing. They were trying to tell me Monday he was tired and Tuesday he was acting sick. He's completely fine here. No throwing up at home, played with trains, transformers, and watched some Thomas movies. He fought with Mia about getting off his train track, he did not act sick after bringing him home. I asked him if he felt sick and he said no. We even took him to Awana last night and he had a blast. So anyways today is Valentine's day and he's missing out of his party because they say he is not to come today. He is going to be so upset if he sees Alex with her Valentines from school and he has nothing. There's no school friday and next week they don't even HAVE school so I'm calling the office to tell the receptionist to make sure Alex gets his stuff because he's already pissed he can't go to school.
I am so mad and oh don't start Dave back up on this because he's ready to lay into the teachers. If they can prove to us some sort of stomach flu then fine but when he's acting great but the food looks and smells like shit, then I'm sure that's what set him off.
Tuesday, February 12, 2008
Me: "well we've been having more throwing up issues but like I've said before, this I believe is part of the Sensory Intergration Disorder I believe he has.
Mrs.K: "so he did throw up today?"
Me: "yes he did but he throws up or chokes nearly everyday so of course I just sent him to school. If it's stomach flu, I'll notice the difference."
Mrs. K: "ok well I just want to make sure this isn't the stomach flu because we don't want to contaminate any other students."
Me: "while I have you on the phone, has he been eating at school? He comes home hungry daily. Could you please ask him to take some no thank you bites if he's not eating well?"
Mrs. K: "Oh well we don't force kids to eat."
Me: "I'm not saying force him but ask him to take one nibble of what he has on his plate. If it's soft that'll set him off so just like the chicken nuggets, corn dogs, and other things."
Mrs.K: "I will ask one of the other ladies to see if they can get him to eat some. Most of the time he just sits there with his food and watches everyone else."
Me: (thinking, oy oy oy!!!!!!!) "ok well that's fine then.
Mrs. K: "well if he throws up and appears sick I'll give you a call later."
Me: "ok. Thanks!"
Argh. I really do not like that these preschool teachers at the grade schoo have no experience with special needs.
Monday, February 11, 2008
They are starting to notice this "tired" trend with him. He lays his head down quite frequently. I've been getting them to bed at 8-8:30 so I have a hard time with him being "tired." He has on occasion, sleep apnea, bad snoring and I know they "think" this could be part of the ADHD/ODD but I'm still having a hard time thinking we should just rip out his tonsils and that will fix that AND his bedwetting. It seems so simple, I just have a hard time believing it. Like an instant overnight cure.
Wednesday, February 06, 2008
Again people online say I need to research Aspergers. I looked up the symptoms and My God that has to be it. I have a feeling that this OT might say that this is his problem. If this is it, it would answer so much. His old teacher already said she was sure he had PDD's but I'm not sure if this is much different. How long can a parent be drug around before getting any answers? He's almost 5!!! I WANT FUCKING ANSWERS!!!! I'm so damn tired of it!! I just want answers!!!!
Why does he jump off the couch and bed repeatedly?
Why won't he attempt to share or play side by side with anyone?
Why does he hurt Damien and act like it's no big deal?
Why does he zone out when he's on the computer?
Why does he talk to himself about Hotwheels when we aren't even in the same room?
Why if anything changes here or at home he falls apart crying?
Why can't we do anything or go anywhere without something being too loud or too bright.
Why can't he understand no??? Why does he do things again after we say no?
Why does he repeat everything so much? He drives me nuts! I know his birthday is coming!!!
Why does my son puke at the smell of baby poop or certain textures in his mouth?
Why can't he wear all his clothes?
Why is he so fascinated with Blue chairs, the D Dinosaur spot on the circle rug, the blue cups.
When will I feel like I can take him to a friend's birthday party?
Why does my family treat him like he's a plague? My family has Alex over but never Dominic.
Why do people always say "he's just a boy!" Why don't they see what we see?
What is going to happen to him once he's in school?
Is he going to succeed?
Why does his school have teachers who are unaware or to help with special needs?????
Tuesday, February 05, 2008
Monday, January 28, 2008
I hope they give these weekly notes to his EI Para (dealing with Special Instruction) too. I have a bad feeling they don't.
Tuesday, January 08, 2008
About a year or so ago when I started updating this blog more, I wanted to add more videos basically so people (or teachers) could see things that I feel I need help with. Today when Linda was here for Damien's ST, I told her I made a video of one of the SID occurances that happened lately. I told her I figured the videos would help since they probably won't see much of it. After I showed the video she was shaking her head in disbelief. She'd never seen the pain side of the sensory issues, just the anger that he shows alot of the time when she's here. Anyways she really wants Dee, the OT (occupational therapist) at the center to start working with him ASAP. Like we've discussed though, as long as I change things to accomodate him, he's ok its when things aren't changed that there's a problem.
Wednesday, January 02, 2008
Last night we went to Target. Target for me is a nightmare but I knew they'd have 75% off Christmas by now. So we went and it was an absolute nightmare. Dominic wanted an roboraptor and was not leaving without one. When I shopped the day after Christmas i found this mini wind up Robopet thing that I believed was in his tastes so I bought it. Big mistake. The robo pet is now his favorite toy and he cries if he's lost it. It's name is "cocoa" but it's green. The box showed the other robo toys and now he wants them all, especially the raptor. So long story short, I bought my things and Dave took him to the car. We came home and he was still sobbing uncontrollably about not getting it. We told him we'd take a few of his duplicate toys back and he could get a roboraptor but he needed to calm down. He was having a hard time breathing he was so upset. It was awful. I can't say this was the first time he acted like this because it's not. That's why I do the whole thing where I let him put a toy in the basket and then ask the clerk to put it back at the register because I'm not buying it since if I say no he'll fall to the floor in a fit. It's just easier to break his heart in the car after he's buckled up. Wrong I know but after it getting harder to deal with in the stores now I've had to resort to that.
Last night Dave was trying to calm Dominic, treating him like a baby. I really don't think this is how his crying fits need to be handled. He can't always expect toys when we go to Target and Walmart. I asked him if he'd like a big bawl baby son when he's in grade school because that's how he's going to be the way he's treating him. I don't know if Dominic's emotions are out of whack from being spoiled or if anything else is to blame. I'm getting to the point where I hate to say "oh it might be this." I'd like to say he's just trying to get his way.